Experiences of falling ill with fibromyalgia: an incursion into the collective imaginary of women
DOI:
https://doi.org/10.1590/1982-4327e3140Keywords:
Fibromyalgia, Collective imaginary, Qualitative research, Women - health and hygiene, PsychoanalysisAbstract
A psychoanalytic exploration of the collective imaginary of patients about a chronic condition can help health professionals to understand the experience of falling ill in its intersubjective aspect. This study aimed to investigate the collective imaginary about fibromyalgia in women affected by this syndrome. This is a qualitative study based on the psychoanalytic investigative method. Data were collected from 18 women through group interviews guided by the Drawing-Story with Theme Procedure. Data analysis followed technical movements defined by the oscillation from a receptive passivity to an active receptivity. Results showed that, after falling ill, the participants did not feel to be the same persons they were before or, in certain cases, no longer regard themselves as persons at all. It was also verified that delegitimation generates psychological suffering described by the participants as a kind of pain. Therefore, it is recommended to value relational technologies in health care offered by multidisciplinary teams to women with fibromyalgia.
Downloads
References
Aiello-Vaisberg, T. M. J., & Ambrosio, F. F. (2013). Rabiscando Desenhos-Estórias com Tema: Pesquisa psicanalítica de imaginários coletivos [Scribbling Thematic Drawing-Stories: Psychoanalytic research of collective imaginaries]. In W. Trinca (Org.), Procedimento de Desenhos-Estórias: Formas derivadas, desenvolvimentos e expansões [Drawing-Stories Procedure: Derived forms, developments and expansions] (pp. 277-302). São Paulo, SP: Vetor.
Armentor, J. L. (2017). Living with a contested, stigmatized illness: Experiences of managing relationships among women with fibromyalgia. Qualitative Health Research, 27(4), 462-473. doi:10.1177/1049732315620160
Ashe, S. C., Furness, P. J., Taylor, S. J., Haywood-Small, S., & Lawson, K. (2017). A qualitative exploration of the experiences of living with and being treated for fibromyalgia. Health Psychology Open, 4(2), 2055102917724336. doi:10.1177/2055102917724336
Ávila, L. A. (2012). Body, subjectivity and psychosomatics. Tempo Psicanalítico, 44(1), 51-69. Retrieved from http://pepsic.bvsalud.org/scielo.php?script=sci_arttext&pid=S0101-48382012000100004
Béjar, V. R. (2017). Dor corporal e dor psíquica: Discursos do corpo [Body pain and psychic pain: Discourses of the body]. In V. R. Béjar (Org.), Dor psíquica, dor corporal: Uma abordagem multidisciplinar [Psychic pain, body pain: A multidisciplinary approach] (pp. 121-146). São Paulo, SP: Blucher.
Boulton, T. (2019). Nothing and everything: Fibromyalgia as a diagnosis of exclusion and inclusion. Qualitative Health Research, 29(6), 809-819. doi:10.1177/1049732318804509
Brown, N. (2018). Exploring the lived experience of fibromyalgia using creative data collection methods. Cogent Social Sciences, 4(1), 1447759. doi:10.1080/23311886.2018.1447759
Canesqui, A. M. (2018). Legitimidade e não legitimidade das experiências dos sofrimentos e adoecimentos de longa [Legitimacy and non-legitimacy of experiences of long-term suffering and illness]. Ciência & Saúde Coletiva, 23(2), 409-416. doi:10.1590/1413-81232018232.14732017
Costa, J. F. (2004). O vestígio e a aura: Corpo e consumismo na moral do espetáculo [The vestige and the aura: Body and consumerism in the moral of the spetacle]. Rio de Janeiro, RJ: Garamond.
Gallo-Belluzzo, S. R., Ferreira-Teixeira, M. C., & Aiello-Vaisberg, T. M. J. (2017). The imaginary of Brazilian adolescents in relation to university entrance exams: A psychoanalytic study. Paidéia (Ribeirão Preto), 27(Suppl. 1), 404-412. doi:10.1590/1982-432727s1201705
Fleming, M. (2003). Dor sem nome: Pensar o sofrimento [Nameless pain: A reflection on suffering]. Porto, Portugal: Afrontamento.
Fontanella, B. J. B., Ricas, J., & Turato, E. R. (2008). Amostragem por saturação em pesquisas qualitativas em saúde: Contribuições teóricas [Saturation sampling in qualitative health research: Theoretical contributions]. Cadernos de Saúde Pública, 24(1), 17-27. doi:10.1590/S0102-311X2008000100003
Fortes, I., Winograd, M., & Perelson, S. (2018). Some considerations about the body in the current psychoanalytic scenario. Psicologia USP, 29(2), 277-284. doi:10.1590/0103-656420170154
Häuser, W., & Fitzcharles, M. A. (2018). Facts and myths pertaining to fibromyalgia. Dialogues in Clinical Neuroscience, 20(1), 53-62. doi:10.31887/DCNS.2018.20.1/whauser
Herrmann, F. (2001). Introdução à Teoria dos Campos [Introduction to the Theory of Fields]. São Paulo, SP: Casa do Psicólogo.
Herrmann, F. (2017). Sobre os fundamentos da Psicanálise: Quatro cursos e um preâmbulo [On the foundations of Psychoanalysis: Four courses and a preamble]. São Paulo, SP: Blucher.
Juuso, P., Skar, L., Olsson, M., & Soderberg, S. (2011). Living with a double burden: Meanings of pain for women with fibromyalgia. International Journal of Qualitative Studies in Health and Well-Being, 6(3), 7184. doi:10.3402/qhw.v6i3.7184
Manna, R. E., Leite, J. C. A., & Aiello-Vaisberg, T. M. J. (2018). Collective imaginary of elderly people participating in the Protection and Defense Network of the Elderly Person. Saúde e Sociedade, 27(4), 987-996. doi:10.1590/s0104-12902018180888
Minayo, M. C. S. (2012). Qualitative analysis: Theory, steps and reliability. Ciência & Saúde Coletiva, 17(3), 621-626. doi:10.1590/S1413-81232012000300007
Oliveira, J. P. R., Berardinelli, L. M. M., Cavaliere, M. L. A., Rosa, R. C. A., Costa, L. P., & Barbosa, J. S. O. (2019). The routines of women with fibromyalgia and an interdisciplinary challenge to promote self-care. Revista Gaúcha de Enfermagem, 40, e20180411. doi:10.1590/1983-1447.2019.20180411
Rosa, D. C. J., Lima, D. M., Miranda, L., & Peres, R. S. (2021). “Problem-patient”: Collective imaginary of nurses about the user diagnosed with schizophrenia. Physis: Revista de Saúde Coletiva, 31(1), e310108. doi:10.1590/S0103-73312021310108
Rosa, D. C. J., Lima, D. M., Peres, R. S., & Santos, M. A. (2019). The concept of collective imaginary in its psychoanalytic sense: An integrative review. Psicologia Clínica, 31(3), 577-595. doi:10.33208/PC1980-5438v0031n03A09
Trinca, W. (2013). Procedimento de Desenhos-Estórias: Formas derivadas, desenvolvimentos e expansões [Drawing-Stories Procedure: Derived forms, developments and expansions]. São Paulo, SP: Vetor.
Turato, E. R. (2013). Tratado de metodologia da pesquisa clínico-qualitativa: Construção teórico-epistemológica, discussão comparada e aplicações nas áreas de saúde e humanas [Treatise on clinical-qualitative research methodology: Theoretical-epistemological construction, comparative discussion and application in the health and humanities areas] (6th ed.). Petrópolis, RJ: Vozes.
Val, A. C., Modena, C. M., Campos, R. T. O., & Gama, C. A. P. (2017). Psychoanalysis and public health: Approaches and possibilities of contributions. Physis: Revista de Saúde Coletiva, 27(4), 1287-1307. doi:10.1590/s0103-73312017000400022
Published
Issue
Section
License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
Regarding the availability of contents, Paideia adopts the Creative Commons License, CC-BY. With this licence anyone is allowed to copy and redistribute the material in any medium or format, as well as to remix, transform, and create from the material for any purpose, even commercial, giving the proper copyright credits to the journal, providing a link to the licence and indicating if changes have been made.
Partial reproduction of other publications
Quotations of more than 500 words, reproductions of one or more figures, tables or other illustrations must have written permission from the copyright holder of the original work for the reproduction specified in the Paidéia journal. Permission should be addressed to the author of the submitted manuscript. Secondarily obtained rights will not be transferred under any circumstance.
Funding data
-
Conselho Nacional de Desenvolvimento Científico e Tecnológico
Grant numbers 307100/2016-2 -
Fundação de Amparo à Pesquisa do Estado de Minas Gerais
Grant numbers PPM-00290-18