PERCEPTIONS OF CAREGIVERS OF PATIENTS WITH COW’S MILK ALLERGY REGARDING THE TREATMENT

Authors

  • Glauce Hiromi Yonamine Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
  • Divanice Contim Universidade Federal do Triângulo Mineiro
  • Ana Paula Beltran Moschione Castro Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
  • Cristina Miuki Abe Jacob Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
  • Antonio Carlos Pastorino Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)

DOI:

https://doi.org/10.7322/jhgd.50392

Keywords:

qualitative research, food hypersensitivity, child, milk hypersensitivity.

Abstract

The aim of this qualitative study was to understand the perceptions of caregivers of children and adolescents with cow’s milk allergy regarding the disease and its treatment. Nine caregivers were interviewed and content analysis method was used. Three categories with subcategories emerged: treatment and education of the patient and their caregivers (life experiences, bases of treatment, coping with the disease), resolution of the disease (hope, gradual  improvement), quality of life (social inclusion, family daily activities, costs of dietary treatment). Caregivers experienced difficulties during the initial treatment but pointed out that the guidance given during follow-up made the adjustments easier. Family members commented on the difficulties about lack of cooperation fromother family members regarding the restrictive diet, their experience coping with the allergic reaction,doubts about the treatment and gaps on knowledge about the disease by other physicians andpeople. Some of them believed that there is no treatment for the disease, because there are nodrugs or vaccines, but they were waiting for cure. The majority of relatives were satisfied with the gradual improvement of patients observed by reduction on the severity of symptoms and tolerance of milk traces within foods. In addition, they commented on the efforts to give a normal life for their children, the changes in their daily lives and the difficulty to buy special products. Concluding,caregivers of children and adolescents with cow’s milk allergy feel a great burden of the disease.

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Author Biographies

  • Glauce Hiromi Yonamine, Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
    Nutricionista, Mestre em Ciências, Supervisora do Ambulatório do Serviço de Nutrição e Dietética do Instituto da Criança do Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
  • Divanice Contim, Universidade Federal do Triângulo Mineiro
    Enfermeira, Doutora em Enfermagem, Professora Adjunta da Universidade Federal do Triângulo Mineiro
  • Ana Paula Beltran Moschione Castro, Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
    Médica, Doutora em Ciências, Assistente da Unidade de Alergia e Imunologia (ICr-HCFMUSP)
  • Cristina Miuki Abe Jacob, Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
    Médica, Doutora em Ciências, Professora Associada do Departamento de Pediatria da FMUSP, Chefe da Unidade de Alergiae Imunologia, Instituto do Coração, Hospital das Clínicas, Faculdade de Medicina, Universidade de São Paulo (ICr-HCFMUSP)
  • Antonio Carlos Pastorino, Instituto da Criança do Hospital das Clínicas, Faculdade de Medicina da Universidade de São Paulo (ICr-HCFMUSP)
    Médico, Doutor em Ciências, Assistente da Unidade de Alergia e Imunologia, (ICr-HCFMUSP), Brasil.Instituição em que o trabalho foi realizado: Departamento de Pediatria - Unidade de Alergia e Imunologia. Instituto daCriança do Hospital das Clínicas de São Paulo – FMUSP, (ICr-HCFMUSP)

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Published

2013-01-23

Issue

Vol. 23 No. 1 (2013)

Section

Artigos Originais

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