Distrofia muscular de Duchenne e as demandas de reabilitação na pandemia da COVID-19 – telemonitoramento

Autores

  • Danila Cristina Petian-Alonso Faculdade de Medicina de Ribeirão Preto da Universidade de São Paulo
  • Karoliny Lisandra Teixeira Cruz Faculdade de Medicina de Ribeirão Preto da Universidade de São Paulo
  • Emanuela Juvenal Martins Faculdade de Medicina de Ribeirão Preto da Universidade de São Paulo
  • Ana Claudia Mattiello-Sverzut Faculdade de Medicina de Ribeirão Preto da Universidade de São Paulo

DOI:

https://doi.org/10.11606/issn.2317-0190.v29iSupl.1a205969

Palavras-chave:

Distrofia Muscular de Duchenne, COVID-19, Reabilitação, Telemonitoramento

Resumo

A Distrofia Muscular de Duchenne (DMD) é uma doença congênita hereditária, ligada ao cromossomo X, lócus Px21, responsável por codificar a proteína distrofina.

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Referências

Sun C, Shen L, Zhang Z, Xie X. Therapeutic Strategies For Duchenne Muscular Dystrophy: an update. Genes (Basel). 2020;11(8):837. Doi: https://doi.org/10.3390/genes11080837

Verhaart IEC, Aartsma-Rus A. Therapeutic developments for Duchenne muscular dystrophy. Nat Rev Neurol. 2019;15(7):373-386. Doi: https://doi.org/10.1038/s41582-019-0203-3

Sobierajska-Rek A, Mański Ł, Jabłońska-Brudło J, Śledzińska K, Ucińska A, Wierzba J. Establishing a telerehabilitation program for patients with Duchenne muscular dystrophy in the COVID-19 pandemic. Wien Klin Wochenschr. 2021;133(7-8):344-350. Doi: https://doi.org/10.1007/s00508-020-01786-8

Spencer GE Jr, Vignos PJ Jr. Bracing for ambulation in childhood progressive muscular dystrophy. J Bone Joint Surg Am. 1962;44-A:234-42.

D'Angelo MG, Berti M, Piccinini L, Romei M, Guglieri M, Bonato S, et al. Gait pattern in Duchenne muscular dystrophy. Gait Posture. 2009;29(1):36-41. Doi: https://doi.org/10.1016/j.gaitpost.2008.06.002

Bamaga AK, Alghamdi F, Alshaikh N, Altwaijri W, Bashiri FA, Hundallah K, et al. Consensus Statement on the Management of Duchenne Muscular Dystrophy in Saudi Arabia During the Coronavirus Disease 2019 Pandemic. Front Pediatr. 2021;9:629549. Doi: https://doi.org/10.3389/fped.2021.629549

Tenforde AS, Borgstrom H, Polich G, Steere H, Davis IS, Cotton K, et al. Outpatient Physical, occupational, and speech therapy synchronous telemedicine: a survey study of patient satisfaction with virtual visits during the COVID-19 Pandemic. Am J Phys Med Rehabil. 2020;99(11):977-81. Doi: https://doi.org/10.1097/PHM.0000000000001571

Wang G, Zhang Y, Zhao J, Zhang J, Jiang F. Mitigate the effects of home confinement on children during the COVID-19 outbreak. Lancet. 2020 Mar 21;395(10228):945-47. Doi: https://doi.org/10.1016/S0140-6736(20)30547-X

Xiang M, Zhang Z, Kuwahara K. Impact of COVID-19 pandemic on children and adolescents' lifestyle behavior larger than expected. Prog Cardiovasc Dis. 2020;63(4):531-2. Doi: https://doi.org/10.1016/j.pcad.2020.04.013

Veerapandiyan A, Wagner KR, Apkon S, McDonald CM, Mathews KD, Parsons JA, et al. The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic. Muscle Nerve. 2020;62(1):41-45. Doi: https://doi.org/10.1002/mus.26902

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Publicado

2022-11-30

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1.
Petian-Alonso DC, Cruz KLT, Martins EJ, Mattiello-Sverzut AC. Distrofia muscular de Duchenne e as demandas de reabilitação na pandemia da COVID-19 – telemonitoramento. Acta Fisiátr. [Internet]. 30º de novembro de 2022 [citado 11º de dezembro de 2024];29(Supl.1):S74-S75. Disponível em: https://periodicos.usp.br/actafisiatrica/article/view/205969