Impact of HTLV-associated myelopathy/T tropical spastic paraparesis (HAM/TSP) on activities of daily living (ADL) in HTLV-1 infected patients
DOI:
https://doi.org/10.5935/0104-7795.20110001Keywords:
Paraparesis, Tropical Spastic, Human T-lymphotropic virus 1, Activities of Daily Living, Quality of LifeAbstract
Aim: To describe the performance of activities of daily living (ADL) of HTLV-1 infected patients with HAM/TSP and to measure the impact of the disease on the patients’ quality of life. Methods: This study is a de-scriptive, cross-sectional study. A total of seventy-three HAM/TSP pa-tients were enrolled at the HTLV Center of the Bahia School of Medicine and Public Health, Salvador, Bahia, Brazil. The index of functional inde-pendence was calculated using the Health Assessment Questionnaire HAQ. The quality of life, including functional capacity, pain, and physi-cal appearance was assessed using the Short-Form Health Survey (SF-36).Results: A total of seventy-three HAM/TSP patients were enrolled with a mean age of 48.9 ± 11.4 years, 57 of whom were (78.1%) women. The duration of HAM/TSP disease was 10 to 37 years (in 50.7% of the patients). Thirty-six patients (49.3%) had a need for walking supports. The lowest ADL performance scores were observed among women and referred to mobility/locomotion (98.2%), dressing (73.7%), and self-care (57.9%) aspects. The quality of life score for the physical aspect was 24.2, and the functional capacity was 27.1. The average for pain was 41.7. Conclusion: HAM/TSP has a negative impact the on the ADL performance of the patients and their quality of life. Assistive technol-ogy devices should be used to improve functional capacity and quality of life for these patients.
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