Translation, cross-cultural adaptation and psychometric properties analyses of brazilian version of Cares of Older People in Europe (COPE Index)
DOI:
https://doi.org/10.11606/issn.2317-0190.v29i3a188879Keywords:
Surveys and Questionnaires, Translating, Validation Study, Quality of Life, CaregiversAbstract
Objective: To translate and crosscultural adapt the COPE Index to Brazilian’s Portuguese and to analyses the measurement properties of the questionnaire among caregivers of disabled people of different ages. Methods: The first step was the translation and cross-cultural adaptation of the questionnaire (n= 31). Followed by the psychometric properties’ analyses of the questionnaire (n=101). The participants of all steps were informal caregivers of disabled people of any age, assisted at Physiotherapy Neurofunctional and Musculoskeletal Rehabilitation in Irmandade da Santa Casa de Misericórdia de São Paulo (ISCMSP). The data were collected between August/2018 and December/2019. The statistical analysis was performed using SPSS® software version 13.0. The interviews were conducted in three different moments, and all the respondents answered the Demographic form, the COPE Index, the Burden Interview – Zarit and WHOQOL – Bref. Results: In the first step, some of the terms were reviewed at the Expert Committee, the test of the pre-final version was performed, and participants had no doubts. In the following step, the internal consistency, calculated with Cronbach’s Alpha coefficient, varied 0,54 to 0,67, the reliability was classified as substantial (ICC=0,81), the error of measurement was considered very good in the three domains, it was observed moderate correlation with Burden Interview – Zarit and WHOQOL – Bref and ceiling effect was observed in Positive Value and Quality of Support. Conclusions: The translation and adaptation of the COPE Index proved to be satisfactory, with moderate values of the measurement properties, suggesting its use to assist the health practitioners.
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Brasil. Ministério do Planejamento, Orçamento e Gestão. Nacional de Saúde 2013. Brasília (DF); Ministério do Planejamento, Orçamento e Gestão; 2013.
Padilha BW, Carrasco AC, Binda AC, Fréz AR, Bim CR. Qualidade de vida e sobrecarga de cuidadores de deficientes físicos. Rev Bras Qual Vida. 2017;9(1):3-16. Doi: http://dx.doi.org/10.3895/rbqv.v9n1.5078
Câmara FS, Martins WLL, Moura MLN, Melo CS, Medeiros NSR, Gadelha ECM, et al. Perfil do cuidador de pessoas com deficiência. Rev Bras Cienc Saúde. 2016;20(4):269-76. Doi: http://doi.org/10.4034/RBCS.2016.20.04.02
Braccialli LMP, Bagagi PS, Sankako AN, Araújo RCT. Qualidade de vida de cuidadores de pessoas com necessidades especiais. Rev Bras Ed Esp. 2012;18(1):113-26. Doi: http://doi.org/10.1590/S1413-65382012000100008
Juntunen K, Nikander R, Tormakangas T, Tillman P, Salminen A. Reliability and validity of the COPE index among caregivers of disable people. Appl Nurs Res. 2017;33:102-7. Doi: http://doi.org/10.1016/j.apnr.2016.11.002
Bocchi SCM. Vivenciando a sobrecarga ao vir-a-ser um cuidador familiar de pessoa com acidente vascular cerebral (AVC): uma análise do conhecimento. Rev Latino-Am Enferm. 2004;12(1):115-21. Doi: http://doi.org/10.1590/S0104-11692004000100016
Lima ML. Qualidade de vida de indivíduos com acidente vascular encefálico e de seus cuidadores [Dissertação]. Ribeirão Preto: Faculdade de Medicina de Ribeirão Preto da Universidade de São Paulo; 2010.
Mckee JK, Philp I, Lamura G, Prouskas C, Oberg B, Krevers B, et al. The COPE index--a first stage assessment of negative impact, positive value and quality of support of caregiving in informal carers of older people. Aging Ment Health. 2003;7(1):39-52. Doi: https://doi.org/10.1080/1360786021000006956
Balducci C, Mnich E, Mckee KJ, Lamura G, Beckmann A, Krevers B, et al. Negative impact and positive value in caregiving: validation of the COPE index in a six-country sample of carers. Gerontologist. 2008;48(3):276-86. Doi: https://doi.org/10.1093/geront/48.3.276
Roud H, Keeling S, Sainsbury R. Using the COPE assessment tool with informal carers of people with dementia in New Zealand. N Z Med J. 2006;119(1237):U2053.
Moholt JM, Friborg O, Skaalvik MW, Henriksen N. Psychometric validation of the Carers of Older People in Europe Index among family caregivers of older persons with dementia. SAGE Open Med. 2018;6:2050312118792812. Doi: https://doi.org/10.1177/2050312118792812
Gonzales-Luis J, Alonso-Maza M, Fernandez-Pascual S, Toro-Flores R, Cuesta-Lozano D. Adaptación transcultural en España del cuestionario COPE-Index (Carers of Older People in Europe). Enfermería Comunitaria. 2020;16:1-5.
Valer DB. Adaptação do Instrumento Caregiver burden inventory para o uso de cuidadores de pessoas idosas no Brasil [Dissertação]. Porto Alegre: Universidade Federal do Rio Grande do Sul; 2012.
Brasil. Lei n° 13.146, de 6 de julho de 2015. Institui a Lei Brasileira de Inclusão da Pessoa com Deficiência (Estatuto da Pessoa com Deficiência) [texto na Internet]. Diario Oficial da Republica Federativa do Brasil, Brasília (DF): 2015 Jul 7 [citado 2020 Ago 1]. Disponível em: http://www.planalto.gov.br/ccivil_03/_ato2015-2018/2015/lei/l13146.htm#
Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine (Phila Pa 1976). 2000;25(24):3186-91. Doi: https://doi.org/10.1097/00007632-200012150-00014
Mokkink LB, Prinsen CAC, Bouter LM, Vet HCW, Terwee CB. The Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) and how to select an outcome measurement instrument. Braz J Phys Ther. 2016;20(2):105-13. Doi: https://doi.org/10.1590/bjpt-rbf.2014.0143
Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60(1):34-42. Doi: https://doi.org/10.1016/j.jclinepi.2006.03.012
Scazufca M. Versão brasileira da escala Burden Interview para avaliação de sobrecarga em cuidadores de indivíduos com doenças mentais. Rev Bras Psiquiatr. 2002;24(1):12-7. Doi: https://doi.org/10.1590/S1516-44462002000100006
Fleck MPA, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, et al. Aplicação da versão em português do instrumento abreviado de avaliação da qualidade de vida “WHOQOL-bref”. Rev Saúde Pública. 2000;34(2):178-83. Doi: https://doi.org/10.1590/S0034-89102000000200012
Monteiro EA, Mazin SC, Dantas RAS. Questionário de avaliação da sobrecarga do cuidador informal: validação para o Brasil. Rev Bras Enferm. 2015;68(3):421-8. Doi: https://doi.org/10.1590/0034-7167.2015680307i
Bandeira M, Calzavara MGP, Freitas LC, Barroso SM. Family Burden Interview Scale for relatives of psychiatric patients (FBIS-BR): reliability study of the Brazilian version. Rev Bras Psiquiatr. 2007;29(1):47-50. Doi: https://doi.org/10.1590/S1516-44462006005000015
Medeiros MMC, Ferraz MB, Quaresma MR, Menezes AP. Adaptação ao contexto cultural brasileiro e validação do "Caregiver Burden scale". Rev Bras Rematol. 1998;38(4):193-9.
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